The Memphis Center for Independent Living

Senator Bill Frist and Deborah Cunningham.

When Your Health Privacy is Violated, Complain!

If a pharmacy, health plan, hospital or medical practitioner improperly shares your health information, they may have violated the Health Insurance Portability and Accountability Act of 1996 (HIPAA). The Department of Health and Human Services (HHS), the federal agency with the power to enforce this Act, has a new web site that shows how it enforces the federal health care privacy standards. You can also file a complaint on their web site.

HHS' online FAQ helps explain the extent and limitations of this Act at http://www.hhs.gov/hipaafaq/index.html.

With over 26,000 complaints filed alleging some sort of HIPAA violation, the web site has statistics and summaries about the complaints. HHS also shows some of the corrective actions they have obtained from companies that individuals complained about. Other information on the site shows patients' rights to have access to their health records and to control how protected health data are used and disclosed.

The HHS HIPAA enforcement web site is at http://www.hhs.gov/ocr/privacy/enforcement 

You can file your complaint using the information on the web site at http://www.hhs.gov/ocr/privacyhowtofile.htm  or contact HHS by phone 1-800-368-1019; or by TTY: 1-800-537-7697; or via email: OCRComplaint@hhs.gov 

For additional information on HIPAA or on your health care civil rights, contact the HHS Office for Civil Rights/HIPAA as follows: 1-800-368-1019 - Civil Rights; 1-866-627-7748 HIPAA; TTY: 1-800-537-7697; Email: OCRMail@hhs.gov 

If you file a complaint at HHS and you don't mind sharing this with AAPD, please let us know. We believe there may be more and more such concerns as health records become more and more "digitized." Contact either Jenifer Simpson at aapdjenifer@aol.com or Anne Sommers at aapdanne@earthlink.net 

Source: AAPD


MCIL Journal Index 2007

Date Name
1/4/2007 Trip to Horshoe on MCIL
1/5/2007 ADAPT Youth Appalled at Parents Surgically Keeping Disabled Daughter Childlike
1/10/2007 MCIL comments on Mayor Herenton’s Liberty Bowl Stadium plan.
1/12/2007 ADAPT of Tennessee secures several commitments from Robert Lipscomb at the Memphis Housing Authority.
1/31/2007 Disabled People and Poverty in 2007.
2/1/2007 The Road To Freedom.
2/19/2007 Mental Retardation Is No More.
2/22/2007 Community Choices Act of 2007.
3/7/2007 Harkin introduces the Community Choice Act of 2007.
3/10/2007 Text of S799 the Community Choice Act.
3/26/2007 Tennessee ADAPT Success!
3/2/2007 Motorized Wheelchairs for Nursing Home Residents.
4/2/2007 U.S. Disgrace at UN Convention Signing Ceremony.
4/3/2007 Ask the Candidates to Answer the Questions!
4/5/2007 Help Pass the Community Choice Act.
4/26/2007 Report: U.S. Needs Better System for Disabled.
5/4/2007 When Your Health Privacy is Violated, Complain!
5/13/2007 Disability Rights and the Death Penalty.
5/20/2007 Project Action Announcement.
5/30/2007 Information on the "Ashley Treatment."
6/12/2007 Housing Crisis Facing People with Disabilities.
6/13/2007 Project Based Housing Vouchers and the "Family's Right to Move".
7/10/2007 ADAPT Pushes the Community Services Act.
6/8/2007 Four Memphis Schools To Become ADA Compliant.
6/27/2007 New Report Underscores Housing Crisis Facing People with Disabilities.
7/11/2007 ADAPT recap on Senate HELP Committee long-term care hearing.
7/15/2007 HUD Secretary Asks Housing Authorities for MFP Update.
7/26/2007 Americans with Disabilities Act: July 26, 2007.
8/6/2007 Municipal Election POLITICAL SOAPBOX.
8/8/2007 Disabled People and Physically Restraints in Nursing Facilities.
8/18/2007 FY 2006: Medicaid Expenditures for Institutions versus Community-Based Services.
8/25/2007 On a "Mission from ADAPT," Disability Activists Blow into the Windy City to Attack Segregation.
8/28/2007 Abusing Drugs In Nursing Facilities.
9/12/2007 ADAPT's 2007 Chicago Action.
9/13/2007 ADAPT at AFSCME.
9/20/2007 U of M professors' benefits fall short.
9/24/2007 Another handle? One U.S. Attorney's Lawsuit Against A Nursing Home.
9/25/2007 Community Choice Act Hearing in the U.S. Senate.
9/27/2007 Victory for Institutionalized Californians.
10/4/2007 AARP Supports the Community Choice Act.
10/22/2007 Get Involved!
12/9/2007 Nursing Home Closings Show Broken System